Peter Gwydion

Developmental ideas from long, long ago…

We had our EI “evaluation” a couple of weeks ago.  It was just fine, and we really liked the people who came out - C, our services coordinator, and M, the nurse who runs the developmental tests.  At the evaluation, M found that Gwyn is actually just fine chronologically in gross motor skills - he’s learning to walk, crawling and climbing well, and quite strong!  His fine motor and language skills - which go hand in hand - were developmentally behind his gross motor skills.  Since babies often have growth spurts in one area, then have a growth spurt in another, this wasn’t surprising, and not worrisome at all.

Now that he’s crawling all over the place, though, I thought it would be great to have a teacher come in and show me some new games to play with him, so that we could enjoy each other more in this new developmental stage.  So, that was our plan - a teacher, specializing in fine motor skills, would come out twice a month to teach us new games and fun ways to help Gwyn’s development.

The teacher, E, came out for the first time a few days ago.  With her came K, a physical therapist.  While playing with him, K determined that Gwyn didn’t need fine motor skills therapy, but needed occupational therapy - that his tendons and muscles were supposedly somewhat tight, which would affect his ability to walk and balance normally.  What she saw was “very subtle,” but she said that it merited having an occupational therapist, and that his balance would be adversely effected until we “fixed it.”

As it turned out, K wasn’t even supposed to BE here that day.  She “tagged along,” then gave an opinion - based, again, on a very brief assessment - which totally changed the course of what we thought were doing.  And, as a result, I feel (once again!) like I have no clue what’s going on, like I shouldn’t listen to my intuition that Gwyn is fine.  It’s yet another “expert” telling me blithely that something different is wrong, which I need to fix or I’m failing my child.

I’m most upset because EI was supposed to be an addition to our everyday life, and not supposed to impact our relationship.  The way I understood EI was that Kevin and I would remain the experts on Gwyn.  We would incorporate new kinds of play, or new kinds of stretches, into our day, but that would be the extent of it.  Instead, I find myself going, “Is that normal?  Is that normal?” about every behavior Gwyn exhibits.  I’m analyzing his behavior instead of celebrating it.  It’s an unwelcome element, and I’m not willing to let that attitude color my relationship with my son through his babyhood.

We have another meeting with C, our services coordinator, tomorrow.  Hopefully she can tell us why K came in the first place, if she wasn’t authorized to.  We also want to know what this means for the two hour evaluation that we went through when beginning with the program.  Can its findings really be overturned by a physical therapist with half an hour to kill and no compunction about being “invited” somewhere?  If so, what’s the point?  How can we trust that the course we’re taking is the right one, if every “expert” they’re affiliated with has a different opinion on what the right course is?

Needless to say, it’s incredibly frustrating.  I don’t like feeling unsure about the treatment that we may or may not give Gwyn, especially when I happen to think his balance is just fine:

His love for the kitties is also doing quite well.

Here at the Baker-Ewert household, September has flown by.  Suddenly autumn is here.  The leaves are changing outside, we’re wearing more layers inside, and Peter Gwydion is a year old!  Here is a whirlwind tour of the major highlights of our September 2009:

Birthday Boy!

Peter’s first birthday was September 18!  We celebrated that weekend with cupcakes, family and friends.  Gwyn immediately went to sleep - I think being the Guest of Honor was a bit much pressure for him.

Cupcakes have nothing over the flavor of nursie milk, apparently…

He also got a lovely long visit (and walk!) with Aunt Lori, Mimi and Grandma afterwards, which he liked quite a lot.

Being pushed by Aunt Lori

Walking with Aunt Lori, Mimi and Grandma

The Outdoorsman in his natural environment (and new birthday hat, which we LOVE).

Snuggles with Mimi

Developmental Clinic visit and Early Intervention

The Monday after Peter’s birthday, Momma and Peter made the trip to Du Bois to visit the Developmental Clinic.  It was a long, tearful journey for both of us.  Peter has maintained his firm anti-car stance, which makes an hour and a half trip seem much, much longer.  The visit to the clinic itself was frankly disappointing.  After a much shorter evaluation than we were expecting, their diagnosis was that Peter showed significant developmental delay, which seemed incorrect and was really upsetting!  We were referred to the Early Intervention program, whose services we had actually declined when we first came home with Peter.  No one at the clinic, though, could tell me exactly what Early Intervention would do when we contacted them (except that they’d do another evaluation - wow, sounds helpful!).  They did tell us that Peter would definitely be admitted to the program because he was an early bird, and in their assessment Early Intervention doesn’t adjust his age for his prematurity.  Typically, in an evaluation of a premature baby’s development, you have their “chronological age,” which is calculated from their actual birthday (September 18) and “gestational age,” calculated from their due date (December 13).  Obviously, you wouldn’t expect a nine month old to be doing the same things that you would from a baby who is a year old, so it’s  useful to remember that developmentally Peter is nine months old, although the calendar says he’s a year.  We know.  It’s  confusing.  What was more confusing was what would be useful about Early Intervention, if they weren’t going to make this adjustment - without it, he is guaranteed to show “delay.”

After some consultation between Daddy and Momma, we decided a phone call couldn’t hurt to get some information about Early Intervention in their own words.  Surprisingly, though, given our expectations from the lack of information at the Clinic, the phone call was very helpful!  The program is very family centered - they are as involved, or not involved, as you want them to be.  We learned that the reason Early Intervention doesn’t adjust their expectations for prematurity is because the entire purpose of the program is to get premature babies’ development caught up to their chronological age faster.  During an evaluation of his skills, though, parents are active participants, and let know where his development is at.  So, although he’s a year old, knowing that his development is on track for his adjusted age is reassuring for us and shows there’s no problem.  Knowing a few new games to play, though, that will help his chronological age be the same as his gestational age faster certainly won’t hurt!

Since the phone call went well, we scheduled a meeting with a representative of Early Intervention.  During the meeting, which happened at home, we filled out a preliminary questionnaire about Peter’s current state of development and found that he is perfect for his gestational age.  While I take some issue with the idea of quantifying development in a checklist and then scoring it, his “score” landed him squarely between eight months and a year developmentally, which is perfect (and a far cry from the six months that we were told at the Clinic in Du Bois).  Since EI services are free and low-pressure, though, we are continuing on with them to help Peter get caught up to his chronological age faster.  Nothing wrong with giving our boy a bit of a head start - although lately he’s showing us that he really doesn’t need it (turn your volume down, because the first noise is a rather high-pitched Mommy voice):

Yeah.  He can crawl all over the house now, and loves to walk while holding Mom or Dad’s hands.  He also  looks for hidden objects, puts everything in his mouth, and bangs toys on the table.  He’s experimenting with lots of noises, although “mama” is still the favorite.  Developmental delays, my tuckus.

Healing and moving forward (but not “moving on”)

We are still in the middle of doing lots of healing and processing.  While we were in Du Bois, Gwyn and I went to visit the NICU.  It’s so nice to see our friends there, but this visit was obviously imbued with special significance.  Kim and Laurie - the nurses who were there when Gwyn was born - were there for a snuggle, and Dr. Hassan even gave us a small present (because Peter is obviously his favorite baby he’s ever taken care of…I don’t know how he’d feel about me saying that, though..).  There is something inherently comforting about being with the people who know as well as I do the path that we walked to get where we are today.  We don’t need to say anything about how small he was, or how incredible he is, because I know they see him through the same eyes that I do.  I’m sure the image of the two pound twenty-eight-weeker is as strong in their minds as it is in mine, and I know they’re as proud of him as I am.  It’s an amazing thing to share.

As we were leaving, we ran into a couple who was coming in to see their daughters.  Gwyn smiled at them, and I told them a little about his birth and our journey through the NICU.  I hope it helped them to know that things would work out the way it would help me a year ago to meet babies who were NICU veterans.  On the way home, while I thought how much he’s been through, I cried quite a bit.  The NICU and our experience there is going to continue to be a huge part of our lives for years to come, and that’s okay.  I just hope they continue to be okay with us visiting.

We’ve taken some big steps into the wonderful world of solid foods!

As many of you know, we started out with thickened feeds when we came home due to issues with reflux.  Lots of premature babies have reflux (isn’t it funny that I automatically say “reflux” instead of “heartburn?”  It’s the same thing!).  Their tiny bellies aren’t big enough to hold in their food, and of course the food needs to stay in to help them grow.  One of the treatments for reflux in a preemie is to thicken their bottles with rice cereal, so that it’s got a better fighting chance of staying in there.  It also supplies some extra calories, which is a plus when baby weighs about three pounds!

Since December, though, Gwyn’s been nursing exclusively, which meant no more thickened bottles.  We had some issues with spitting up, but noticed strongly that his guts seemed to be working better!  Since then, we’ve learned a lot about solid foods, and that oftentimes grains can be difficult to digest (although rice is usually the best bet). Some theories are also that starting off on the easiest to digest foods and slowly working to more complex ones can lead to less allergies in later life. So, instead of re-starting him on rice cereal, we opted for fruit - specifically, an avocado-pear concoction that we made up.  Avocados are packed with great nutrients for Sweet Pea - tons of calories, yummy fats, iron, potassium, and, seriously, who WOULDN’T want to eat a blended avocado-pear-sauce?  I’m thinking of putting some on ice cream.

I’m also really proud that he has been exclusively breast fed (with formula boosting the caloric content for a while) until he was seven months adjusted and ten months calendar, when he began to give us signs he was ready for food.  Instead of watching a calendar, we realized he was able to sit on his own, that he was mouthing everything that he could, and that when we did let him try some food it got swallowed!  In a society where most women breast feed for a matter of weeks if not days, I feel like I deserve to pat myself on the back for continuing nursing and (among other benefits) helping to protect Gwyn against food allergies!  Breastmilk contains so many amazing properties, one of which is a special antibody that coats the intestines, helping them to not see food as a foreign body that needs to be attacked (can you tell I’ve been doing my La Leche League reading?).  As adults, we make our own supply of this antibody, called immunoglobulin A.  Infants, though, get a big supply of it from momma milk!  IgA’s important role in preventing or lessening the impact of food allergies is one of the many reasons that our motto is “food is for fun until he’s one.”  Even though he’s getting a few important calories and nutrients from what he eats, the lion’s share of his nutrients are still coming from nursie milk.

He needs lots of nutrients ’cause he’s a growing machine.  I’m hungry all the time.

Seriously, I ate three Bavarian cream donuts yesterday, and they were totally delicious.

But, since I’m sure everyone but the most die-hard lactivists (hi guys!) who read our blog are tired of nursing pictures, here’s a few of one of our recent forays into food:

Squeezing an update in while Gwyn is (finally) asleep!

The past few weeks have seen us busy, busy, busy doing the parenting equivalent of treading water.  Gwyn is doing so much learning and growing!  He can:

• Bounce and bounce and bounce.  He’ll try to bounce while being held in someone’s arms.  He loves the Jump-Jump (is it actually called a Jumparoo?) that we’re borrowing from Cousin Soren.
• Pull himself up while holding hands.  This is actually the optimal position for bouncing.  He has yet to pull himself up on any furniture, though.  Probably this is because we try to keep him in wide open spaces, because he can…
• Rock on hands and knees!  While he’s been doing this on and off for a little while now, he’s become quite proficient at it.  It’s led to a tendancy to…
• Lunge for objects that are close to within reach while rocking on hands and knees.  Typically, this particular action results in a bonk on the head.  We think a few bonks are a major part of childhood and figuring out Newton’s apple-inspired theories, but we want to make sure those bonks are happening on a softer surface than tile.  Our thick wool carpet in the living room has been perfect for it, but it means that someone needs to be within reach at all times - no more sitting him in the Boppy and making dinner!  Last time this was attempted, I looked over from the kitchen to see Gwyn trying desperately to…
• Love on the kitties.  Oh, does he love the kitties.  He hasn’t figured out gentle petting very well on his own yet, so we hold hands so that he can stroke the kitties in a way that both he and our feline companions find enjoyable.  Kinski tries to steer clear, but Mikka is so desperate for love these days - he really misses sleeping in our bed, which he can’t do since Gwyn is there - that he’ll try to get it from any source.  He actually will come and rub his head on Gwyn’s hand sometimes.
• Say “mamama,” and a few other sounds at varying volumes.  He’ll whisper while he’s nursing, and is doing more vocalizing at “normal” volumes than shrieks.  He’s still a fan of what I call the “groar” - something between a grunt and a roar.
• Actually play with toys - and by “actually play with,” I mostly mean “chew on.”  Since everything goes in his mouth, we did some research and found a few safe natural toys for him to “nom on.”  Teeth may make an appearance at some point, but premature babies sometimes teethe late, even for their adjusted age.  It’s not a problem as long as the teeth are there, which they are, but still under his gums.  Since food is still for fun and Gwyn is still pretty much exclusively breast fed, his gums can stay chomper-less for as long as they please.

His sleep patterns are also changing remarkably, with some gentle prodding on our end.  When we first brought him home, Gwyn slept easily, like any other newborn.  Now there’s playing to do, kitties to love on, and the nursies don’t send him to the Land of Nod so easily anymore. A book we really like points out that he does still need a good chunk of sleep (~ 3 hours, ideally in two 1.5 hour naps) during the day as well as 10 - 11 hours at night, which we realized he wasn’t getting.  Overtired babies, funnily enough, have an even harder time going to sleep…so we’re trying to fix that.  To make it easier on everyone, we’ve been trying to feel out his natural sleeping habits.  It seems like his biological alarm clock is set to go to sleep at 7 in the evening, and then wake up at 6 in the morning.  While this isn’t Kevin or my favorite time of day, it’s a perfectly reasonable time for normal human beings, and so more of what needs to be adjusted is our attitude than Gwyn’s sleep patterns.

Seriously, though.  Six in the freaking morning.   Most of my six a.m. parenting consists of saying, “Mmmhm!  Bay-bee!  Boy, you’re strong!” and letting him entertain himself while I watch.  While I watch sleepily.

Now.  Be honest.  Have you read any of that, or scrolled immediately down upon seeing that this post was tagged “video?”  Yeah, I thought so.  I forgive you, because I’m pretty excited too.  We’ve set up a YouTube account so we can upload and share the short videos that we’ve taken with our small camera.  Lights!  Cameras!  Fu-ture tech-no-lo-gy!

We went to the alpaca farm today with Emily and Scarlett.  There’s lots of gorgeous pictures to share, but I especially wanted to show these off:

He’s still pretty wobbly and is mostly a Baby Baryshnikov on his tiptoes, but Gwyn’s doing a lot of standing these days!  This was his first time pulling up on something that wasn’t Momma or Daddy’s hands.  Mostly, I wanted to see if he’d do it.  Turns out he can and will, and since he just turned seven months adjusted yesterday, that means he’s right on track developmentally.

Here’s a few more, some with Emily’s beautiful daughter, Scarlett:

We also weighed him on the alpaca scale - while we didn’t take any pictures, he clocked in at 16.7 pounds.  We probably should have taken a picture just so everyone would believe us.  It’s more than eight times his birthweight.  He’s huge!  Holding him draped across my chest with his head resting on my shoulder is a pretty far cry from the tiny two pound baby we cradled in our hands, and it feels surprisingly bittersweet.  I never thought there’d be things about the NICU that I’d miss, but remember his slender little hands?  They are now chubby and dimpled, like the rest of him.

Most of all, looking at how much he’s grown makes me feel so proud of Gwyn for the hard work he’s done, and I hope he’s enjoying all the playing and learning that his days are filled with.  He’s more than earned it.

The Duke Towers Hotel in Durham, North Carolina!

SUITE

After a long, long car trip, I arrived at Duke Towers with Mom and Dad.  My first impression of the room was that it was impressively spacious, giving me a much-needed opportunity to stretch my legs after eleven hours in the car over two days.

ENTERTAINMENT

The Towers offers fine opportunities for babies like me to enjoy their time in Durham.   On a walk around the Tower’s beautiful garden, we even noticed some ancient art…not to be heliocentric (I know we’re in America), but I wonder if it’s the long undiscovered Egyptian heiroglyph for “cute.”

Just in case, though, Mommy brought a few of our favorite books.

FOOD

I feel it’s important to sample local cuisine.

However, I found the blocks to be not quite as pleasing to my palate as they were to my eye…

…and so went back to a familiar favorite.  Nothing wrong with some comfort food!

IN CONCLUSION

So far, I’m enjoying my stay…and sleeping like a baby.

(Please note: my Boppy pillow is not actually somewhere I’m allowed to sleep.  This was taken during a well-supervised nap.)

Happy (slightly belated) seven month birthday!

You change so slightly every single day that I can’t believe what a different baby you are from week to week.  I’m so lucky that I get to see you grow bit by bit - all the way up to thirteen pounds, six ounces today at the pediatrician.

This month was a big one!  You got to meet your Grandma and Grandpa Ewert and took your first long car trip on a ride to Philadelphia to see Mimi and Grandgeek.  (Side note: While we were visiting, I got you a pink tie-dyed outfit, and I think it’s super cool.)   Through all of this, Daddy and I got to enjoy what a wonderful, calm fellow you are.  Your favorite pastimes - nursing and smiling - don’t seem to change, no matter where you’re at.  I hope it means that you really do feel safe when we’re around, no matter what your other surroundings are!

You’ve learned so much.  You finally rolled all the way over after about a month of going three quarters of the way, but seemed totally unimpressed with this new development.  You seem much more excited to be able to laugh at things that are uproariously funny, like when I turn you into an airplane on my knees.  You also are noticing smaller things, like the embroidery on a shirt, the whiskers on the cat, and the zipper on your sleeping gown (which you’re playing with right now!).  One of your favorite new pastimes is watching Momma’s wedding rings sparkle.  I love to watch you quietly observe and take all of this big world in.

Tomorrow we’re leaving for another big trip down to Durham, North Carolina, where Daddy is directing a play.  I’m so excited to share our visit with you.  There will be lovely trails for walking on while wrapped in the sling, lots of fabulous people to meet, and maybe a Momma/Baby yoga class to take together.  There really is such a lot of world for your big blue eyes to see, and I’m so in love with watching you learn.

I love you,

Momma

During Daddy’s Spring Break, we got to go visit Du Bois for Peter’s developmental clinic followup. It’s really interesting to talk to all the specialists about the cognitive paths through which language and motor skills develop! Ultimately, though, we think Momma and Daddy are the experts on the baby, and we were sure that he was just fine…and, yes, in case you’re interested, the specialists agreed. Pumpkin Pie is actually scoring about a month above his adjusted age in difficult tests such as “follow the boring red ring,” “listen to the outrageously loud bell,” and “coo, gurgle and be generally irresistably adorable.” Afterwards, we got to have a nice long visit with our friends at the NICU - Auntie Laurie was there, along with Dr. Hassan, Auntie Karen, and Auntie Marie. It was wonderful to see them, and (let’s be honest) to show off how much Peter is growing. He weighed in at 11.5 pounds at the clinic - almost sextuple his birthweight!

Since we were halfway there, we continued down to Cranberry Township. Peter got to meet his Great Grandaddy and Nana Lila for the first time and also see Great Aunt Holly and Great Uncle Neil again. He was pretty impressed! We stayed the night in Pittsburgh with Uncle Dan, Aunt Wendy and Cousin Olivia (who determined she is not ready for the pressure that the word “Aunt” entails.). We walked around Shadyside, got to nurse at a coffeeshop (with minimal staring!), Momma got to visit Sephora…it was great to get out. Thankfully, since the weather is getting nicer and RSV season is close to over, we’ll be able to get out more soon.

Happy four month birthday!

I am so proud of the way you’ve learned how to nurse this month.  It’s been really nice to not have to wake up to make bottles!  My favorite part of nursing you is how much you talk while you eat - I think that it’s going to be a while before I’m upset with you for talking with your mouth full.

I am amazed at how interested you are in the world around you.  I love to hold you on my lap while you study my face with your beautiful big blue eyes (lucky, looks like you inherited them from your Daddy!).  For your birthday, Daddy and I got you a black and white “nursing necklace” so you have something to examine closely while you eat.

Thank you for your patience when I have to put you down for a few minutes.  I’m so glad you like to be snuggled so closely.  After only being able to cuddle for a few hours a day at the NICU, I love to hold you as much as you like to be held.  I’m glad that you like the baby sling as much as I do!

Thank you also for telling us when you’ve had enough and are ready for bed at night, when you are hungry, and when you just want to talk.  It’s so nice to be able to give you what makes you so happy, whether that is sleep or bima or just snuggling with me and Daddy.   

I am so lucky that you are my baby and I get to watch how much you grow day by day.  Even as in love as I am with this past month, I’m so excited to see what the next one brings.

I love you,

Momma